Disability Organizations, Resources, & Services

See Also: Books and Booklists for Special Needs

ABRITE / ABRITE Organization
609 Pacific Avenue, Suite 101, Santa Cruz, CA
Offers Early Childhood Intervention, Language and Communication Intervention, Parent Teaching, Assessment, Undesirable Behavior Reduction, Classroom Assistance, Individualized Education Plan Assistance, and Applied Behavior Analysis Workshop for families of children with autism.

Access Santa Cruz County
Resource Guide for People with Special Needs or Physical Challenges includes educational, social, recreational, legal, and accessibility information and services, including lodging and restaurants.  List special events by Shared Adventures.

ADA (Americans with Disabilities Act)
Information, publications and resources regarding people with disabilities.

A Special Nanny
Provides professional nannies and one-to-one aides for families of children with special needs living in the greater Bay Area, including care for children with Developmental Disabilities, Autistic Spectrum Disorders, Physical Disabilities, ADD and ADHD, and Behavioral Challenges.

Blind Babies Foundation
Bay Area -  510-446-2229
Central Valley  – 559-353-6420
The Blind Babies Foundation serves children with visual impairment or blindness and their families. All services are free to families. Services include: home visits; medical referral and support; community resources; family events.

Beach Center on Disability
Comprehensive site serving professionals, individuals and families who are dealing with disabilities of all types, providing: resources and links, parent to parent support and locator for support groups, product information, newsletter, web log, and discussion groups, as well as research and information on a wealth of disability issues.

California Association for Family Empowerment Centers
Provides information, resources, technical assistance, and systems change advocacy for a statewide network of local Family Empowerment Centers that provide family education, empowerment, and parent-professional collaborative activities for families of children with disabilities ages 3-22 years old.

California Department of Developmental Services (Early Start)
“Families whose infants or toddlers have a developmental delay or disability or an established risk condition with a high probability of resulting in a delay may be eligible to receive an “Early Start” in California. Teams of service coordinators, healthcare providers, early intervention specialists, therapists, and parent resource specialists evaluate and assess infants or toddlers and provide appropriate early intervention and family support services for young children from birth to three years of age.”

California Department of Rehabilitation (services for eligible adults and teens)
1350 41st Avenue, Suite #101, Capitola, CA
Provides services to teens and young adults with qualifying disability, toward the goal of employment, including: transition services for teens with IEP’s, ‘Workability’ program (paid job exploration for teens with IEP’s;) funding for books and materials; and funding for vocational skills training, technical school, community college, trade school or 2-yr and 4-yr college education.

Click here for Consumer Information Handbook
Explains eligibility, application process and more

California Foundation for Independent Living Centers
Information about independent living issues, rights, center locations, employment, news and disability legistlation.

California Map to Inclusive Care
Lots of links and resources including disability information, websites, legal issues, relating to inclusive childcare.

California State Council on Developmental Disabilities
1507 21st Street, Suite 210, Sacramento, CA 95811
Email: council@scdd.ca.gov
Works to insure that people with developmental disabilities and their families receive the services and supports they need. SCDD is uniquely composed of individuals with a developmental disability, parents and family members of people with developmental disabilities, and representatives of State agencies that provide services to individuals with developmental disabilities. SCDD advocates for coordinated, comprehensive community services, individualized supports, and other forms of assistance and works to ensure full access to these services. Contact your local area board for an advocate. For local area board contact information: http://www.scdd.ca.gov/Area_Boards.htm

Join to post a listing or search for caregivers in your area, who are rated by others who have used their services.  {This is posted for informational services only and is not an endorsement.  Please check out all services and providers carefully!}

Care at Home – Respite Services
www.careathomerespite.com / www.careathomehealth.com
300 Orchard City Dr Suite 108, Campbell, CA
408-379-3990 x101
Serves families with children who may be developmentally delayed or disabled, medically fragile, or those who have other special needs.   Services can be contracted through community-based organizations and private families.

CCCIL Central Coast Center for Independent Living
1395 41st Ave., Capitola, CA. 95010
Disabilities Organization for support and advocacy

CHADD (Children and Adults with Attention Deficit Disorders)
Excellent, all-inclusive support / can refer to or help set-up local chapter.

CHADD of Northern California
Lists groups and resources for the Bay Area primarily.

DisabilityResources.org – Disability Resources on the Internet
www.disabilityresources.org/index.html (Click on your state)
www.disabilityresources.org/CALIFORNIA.html (California only)
Comprehensive lists of your state and regions resources, listed by dozens of categories.

Disability Rights California
Helps with advocacy and protection for disabled people and their families; offers legal, civil and service rights information; technical assistance, training, and publications; legislative advocacy, investigating complaints about physical and sexual abuse and neglect-related deaths in institutions; outreach to underserved ethnic and disability communities; peer self-advocacy services, patients’ rights advocacy for state psychiatric hospital residents, training for county advocates; and rights advocacy for clients at regional centers.

Offers lifestyle articles, blogs, forums, and health information providing shared knowledge about SCI, cerebral palsy, fibromyalgia, multiple sclerosis, and other disabilities. For disabled individuals and caregivers, who are interested in finding or sharing information, including adaptive sports, accessible travel, or any other disability-related topic.

ECE Zero to Three – Dana’s Child Health and Development
Dana offers her blog and resources (local, state, and national) for families and early childhood education professionals & students.  She blogs from her expertise in child development; pediatrics; health, safety and nutrition; feeding; special needs, and from working with ECE and special needs families.   Main topics include: educational philosophies, infant mental health, prematurity and twins/multiples, special needs/disabilities, plus check out her infant/toddler developmental stages charts. {For disability resources, scroll down on the left to access that section with a long list of topics to click on.

Family Mental Health Advocacy Services
Community Connection
300 Harvey West, Boulevard, Santa Cruz, CA
Mariposa Wellness Center
10 Carr Steet, Watsonville, CA
Children’s Mental Health Advocate
Adult Mental Health Advocate
Offers newsletter, events, speakers and presentations to local groups, telephone support for both English and Spanish speakers. Their website does not seem to be up to date, but does offer a good list of general resources and California resources.

Friends of Special Needs Families
Offers support, friendship, and life skills training to developmentally disabled individuals (from birth to adult) and their families, with playgroups, family gatherings, art and cooking classes, martial arts training, after-school program, social skills classes, and independent living skills programs, for families in the East Bay, South Bay and Peninsula.

Inclusion Collaborative of Santa Clara County

Inclusion Support Warmline:
E-mail: inclusionwarmline@sccoe.org
Offers info on Kit for Inclusion Team Success (KIT), Related Resources and Links, Training Materials and Publications; works to provide advocacy and inclusion for special needs children in collaboration with teachers and community members, as well as professional development for teachers and administrators . Provides the Warm Line: Specialist provides FREE support, information and referral service about the inclusion of children with special needs/disabilities in the community for parents and educators, who are implementing inclusion in their programs or desire to begin an inclusive model.

Jacobs Heart Children’s Cancer Association
2007 Freedom Boulevard, Freedom, CA 95019
Services for children, young adults, and their families include Family Helpline, consultations, support groups, education, referrals, advocacy, accompanying to IEP’s and appointments, and access to other mental health services. Nonprofit organization serving children with cancer and their families in Santa Cruz, San Benito and Monterey Counties. Assuring that families are supported emotionally, financially and socially.

IMPACT (for parents of deaf and hard-of-hearing children)
IMPACT is a California statewide all-volunteer, non-profit organization of parents, teachers and professionals serving families with deaf or hard-of-hearing children offering links to resources, parent-to-parent support, yahoo online group, events, speakers, and more.

Invisible Disabilities Association
Offers information, personal stories of encouragement, education about disorders, online resources and social media for connecting, products, and news.

MATRIX Parent Network
94 Galli Drive, Ste. C, Novato, CA
415.884.3535 tel    800.578.2592 toll free
Offers help line, parent advisor, trainings, Early Start Program, Birth-toThree Prevention program, special events, referrals, support groups, resource library, and publications for families in Marin, Napa, Solano, and Sonoma Counties.

Mental Health Services for Santa Cruz County – Resources List
List of local and Bay Area resources, including agencies, reports, and links and self-help resources.

National Alliance for the Mentally Ill of Santa Cruz County: NAMI-SCC
The National Alliance for the Mentally Ill (NAMI) is a grassroots organization providing support, education and advocacy for people with serious mental illnesses and their families and friends, for serious mental illnesses include schizophrenia, major depression, bipolar disorder (manic depression), obsessive compulsive disorder, panic disorder and other brain disorders and for children and adolescents, this includes ADD, autism, pervasive developmental disorder and Tourette’s syndrome.

National Association for the Education of African American Children with Learning Disabilities
Find research-based information on disparities in education and special education for African American Children, as well as information about special education laws, procedures, IEP’s and 504′s, and evaluations.  You can also purchase a Parent Guide for a few dollars, complete a free online advocacy training, find other resources and organizations, and get a list of agencies who provide educational financial assistance for students in K-12 and beyond.

National Center For Learning Disabilities
Comprehensive site with information & resources for all ages and topics, including help at home, school, and work. Offers classroom strategies, accommodations, and modifications.

PARCA – Serving People with Developmental Disabilities and Their Families
San Mateo County Organization which “provides a wide range of high-quality services to people with developmental disabilities including independence training for adults, a recreational and educational child care program for children with and without developmental disabilities; respite care services for children and teens and family support services that include information, referral, recreation and social gatherings, advocacy and support groups.”

Parent Training Centers (California) PTI’s
Each PTI is parent-directed and funded by U.S. Department of Education and helps to provide parents of children with disabilities, birth through age 26, with the training and information to help their children meet developmental and functional goals, and to prepare them for independent living, as well as provide parent training on their rights, responsibilities and protections under IDEA. PTI’s offer parent support with: information and referral, workshops, parent mentor training, transition information, assistance and advocacy for educational and services issues, support groups, resource/lending library, and information packets.

Parents Education Network
81A Sixteenth Avenue, San Francisco, CA 94118
Offers conferences, lectures and workshops, teen support groups and school Liasons, e-newsletter, resource guide, information and links for teachers of, parents of, and the children and teens with AD/HD and/or LD

PHP (Parents Helping Parents)
1400 Parkmoor Ave. Suite 100, San Jose, CA  – Sobrato Non Profit Center
PHP is a family resource and service center for parents of children with special needs and the professionals who serve them, providing information, resources, support groups, workshops, adaptive technology help, lending library, and activities for special needs families.

Click here for a listing of PHP’s services for families and and the special needs community.

Click here to to search for local and Bay Area resources via PHP’s website

Click here for PHP’s ‘e-packets’
Packets that can be emailed to you, with lists of websites on many different topics related to Special Education and IEP’s.

Positive Parenting Warmline (by Live Oak Family Resource Center)
476-7284 ExT. 104
M-F 9-4 pm/ Sat/ 9-2 pm
Guidance and support for parents at no cost

Procedural Safeguards and Referral Services Hotline
Toll-free: 800-926-0648
TTY: 916-323-9779
Weekdays  -  9:00 a.m. to 4:00 p.m.
Provides free technical assistance information and resources for parents, school districts, advocates, agencies and others of procedural safeguards regarding students between ages 3 and 21 with disabilities and their educational rights. You can also lodge a complaint about your child’s IEP or 504 services.

Project Playroom
1900 Garden Road, Suite 210, Monterey, CA
Download their family membership form ($40 annual fee) to borrow toys for special needs children.
Contact them by phone or online for more information or to join.

RiSE Library (Resources in Special Education Library)
To order by phone, call Judy Bower at 408-727-5775, Ext 110
CalSTAT manages this Library, which makes available documents that offer research-proven strategies and information recommended by educational stakeholders. Residents of California can check out these resources free of charge by ordering through phone, email, U.S. mail, and fax, or by visiting the library in person. Access the library online. The RiSE Library is located at Parents Helping Parents of Santa Clara, a parent training and information center.

San Andreas Regional Center
intake: www.sarc.org/intake.html

Santa Cruz County
1110 Main Street, Watsonville, CA

San Benito County
7855 Wren Avenue, Suite A, Gilroy, CA
San Andreas Regional Center is a community-based, private nonprofit corporation funded by the State of California to serve people with developmental disabilities (such as Mental Retardation, Cerebral Palsy, Epilepsy, Autism, and other conditions) as required by the Lanterman Developmental Disabilities Act. Some examples of the services funded by San Andreas are: Family support services such as respite and day care; community living arrangements such as residential care and supported living; and advocacy to access In Home Support Services (IHSS) or In Home Shift Nursing.
Jane Lefferdink, Executive Director of Area Board 7 Overseeing SARC.
Jennifer Lucas, Area Board 7 advocate
Mary Mahur, Board Advocate, Specializing in Issues with the School System.

Santa Cruz Public Library Community Guide
Listings of local agencies for ‘Disabled’ People

SELPA – Areas of California List

SELPA Monterey County

SELPA North Santa Cruz County
809 H Bay Avenue, Capitola, CA
Provides support to parents of children with disabilities and coordinates with districts and schools to help facilitate the support they need.

SELPA North County Special Education Directors List

SELPA Pajaro Valley School District
294 Green Valley Road, Watsonville, CA
State-mandated agency that oversees and facilitates educational services for students with disabilities in the PVUSD.

SELPA Santa Clara County
1290 Ridder Park Drive, San Jose, CA
Coordinates with school districts and the County Office of Education to provide a continuum of programs and services for disabled individuals from birth through 22 years of age. Also available as a resource to the community on issues related to special education.

Special Kids Crusade
1900 Garden Road, Suite 230 v Monterey, CA
Offers resource center, programs and events, workshops, and local resource guide for parents of children of any disability.

Special Kids Crusade Family Resource Directory
Includes resources from Monterey Bay, San Benito, Santa Cruz and other Bay Area Resources for special needs families.

Special Needs Directory – Greater San Francisco Bay Area
Directory of resources in the Greater Bay area for children with developmental disabilities and their families, including lists of schools, therapies, and information on Early Start, Occupational, and other programs.

SPIN (Special Parents Information Network)
722-2800  or  423-7713
Support for Parents of Special Needs Children, with parent assistance and emotional support, workshops, lending library and information packets, advocacy, IEP help, support groups, mentor program & more

SPIN Resource Guide (for listing of local Disability Organizations and Resources
English Resource Guide
Guia de Recursos (Espanol)
SPIN Local Resources websites LIst

SPIN Mentor Parent Program
423-7713  or  722-2800
Parents of special needs children are paired with a ‘buddy’ parent whose child has similar issues. The buddy provides informational and emotional support to the parent, as needed.

Stanford Pediatric Bi-Polar Disorders Program
650-725-6760 or 650- 736-2688
“Dr. Chang and Dr. Singh, Co-Directors of the Pediatric Mood Disorders Clinic, and their colleagues provide consultation services and pharmacologic treatment of children and adolescents with bipolar disorder (BD)” as well as “consultations regarding diagnosis and treatment recommendations for children and adolescents with BD.” They have limited openings for consultations and ongoing treatment.

Support for Families of Special Needs Children – San Francisco Bay Area
(415) 282-7494 Warmline: (415) 920-5040
1663 Mission Street, 7th Floor, San Francisco, CA
Offers phone or drop-in support, workshops and clinics, resource guide, mentor volunteers and support groups, newsletter and family events.

Techical Assistance Alliance for Parent Centers
Find parent centers in this directory by clicking on a nationwide map or alphabetical list. Also offers resources, publications and technical assistance.

Trichotillomania Learning Center
Information and resources for people with this compulsive condition of excessive hair pulling and skin picking.

United Cerebral Palsy of Santa Clara and San Mateo Counties
The Monterey Bay area is an unaffiliated area for this organization and provides limited services. Does not operate an office, and does not have a funding base. The Santa Clara/San Mateo office will provide information and referral, referral counseling, Supportive counseling, Case advocacy, Access to services, Follow-up services and Support Groups.

United States Access Board
Independent Federal agency devoted to accessibility for people with disabilities, with information on accessible design, icluding design criteria for the built environment, transit vehicles, telecommunications equipment, and for electronic and information technology.  It also provides technical assistance and training on these requirements and continues to enforce accessibility standards that cover federally funded facilities.  Read through their publications on ADA-ABA guidelines and other reports.

Vista Center, Santa Cruz (formerly Doran Center for the Blind and Visually Impaired)
413 Laurel Street, Santa Cruz, CA 95060
Provides services (resources, training, activites) to blind and visually impaired. Offers counseling and aid in adaptive daily living skills to vision-impaired lifestyle. As well as orientation and mobility training.

Wrightslaw Yellow Pages for Kids
Find educational consultants, psychologists, educational diagnosticians, health care providers, academic therapists, tutors, speech language therapists, occupational therapists, coaches, advocates, special education schools, learning centers, treatment programs, parent groups, respite care, community centers, grassroots organizations, and government programs and attorneys for children with disabilities on the Yellow Pages for Kids in Northern California area.